Meet Jordan: Cystic Fibrosis Association Youth Ambassador

Pamela Thompson • Sep 13, 2023

Jordan has a Hope-Filled Future!

We want to introduce you to Jordan Peterson, our 2023/24 Youth Ambassador.


Jordan grew up in Fargo, the oldest son of Dan and Anette Peterson. Jordan was born with cystic fibrosis and underwent a double lung transplant at age 10.

 

From Jordan:

 

“I was diagnosed with CF right after I was born with the sweat test, my parents were aware that I would have something when my mom was pregnant with me, they just didn’t know what it was till after I was born. I can’t say if the newborn screening made a difference to me but I’m sure it did for my parents because they were able to prepare for raising me. 

 

CF has always affected my day-to-day life more before my transplant than after. I remember growing up and not always being able to keep up with the other kids during various sports activities because of my CF. I think the thing I hated the most growing up was when I would have to come in from playing outside to do one of my 2-3 vest treatments a day which took 45 minutes each time. 

 

Now that I’m post-transplant there is not anything I can’t do that other 21 years olds can. In high school I was able to play any sport I wanted, including football, and as far as we know I am the first double lung transplant recipient to play varsity high school football. So, living post-transplant has been completely different and I often get told “I would never have guessed you have cystic fibrosis or a transplant”. 

 

CFA has been a massive part of my journey helping pay for many appointment visits and now paying for a large part of college. I am incredibly grateful for CFA because of all they have done for me and my family. I don’t have to worry about my college tuition because of CFA and I’m incredibly grateful. 

 

Right now, I am attending NDSU and studying for a degree in finance. My hopes for my future after college hopefully do some traveling around the world and one day to become a business owner. “

 

Here at the Cystic Fibrosis Association, we could not be prouder of Jordan! We have been rooting for him for many years and we look forward to his hope-filled future!

 


By Pamela Thompson 28 Mar, 2024
A little bit of sass and a whole lot of energy!
Running For My Life--Sophie's Story
05 Feb, 2024
I was able to surpass the limitations that used to hinder me and discover the joy of taking my life back. By refusing to let my cystic fibrosis diagnosis impede me, I have made an entirely new definition of “running for my life” and can happily say I no longer meet the requirements of “Failure to Thrive”.
Emily King and her husband holding their newborn baby girl
By Pamela Thompson 19 Apr, 2023
Our story with cystic fibrosis all started when I went into pre term labor at 32 weeks pregnant and found out our daughter had a bowel obstruction. I was only 18 at the time and was terrified. This was also my first child so I was so clueless.
Daviney
By Pamela Thompson 24 Aug, 2022
CFA of ND makes it so much easier for us to travel back and for to Minneapolis for my appointments. I had to make many trips this past year and I hate missing school! We would fly down in the morning and back the same day. CFA provided financial assistance to make this easier for us. I have also been on some amazing medications that have helped me stay healthy and many of those came with a big price tag! Again. CFA helped ease the cost of those meds and helped me stay healthy.
Ella
By Pamela Thompson 03 May, 2022
Young Ella, daughter of Jason and Teri Kujawa, is the inspiration for the Inaugural “Roses For Ella Ride”, scheduled for June 25, starting and ending at Traditions Restaurant and Bar in West Fargo.
Joseph
By Pamela Thompson 24 Jul, 2020
People with CF aren’t very different; we just have a disease with no cure (yet) is all. CF is just another challenge of daily life that people like me have to do deal with, and if you have CF and are reading this, then don’t give up. No matter what, don’t give up.
Logan
By Pamela Thompson 17 Jul, 2020
Logan was born in 2005, luckily in the state of Colorado, a state that thankfully had newborn screening for CF at the time (North Dakota does now!). She was monitored with 2 blood tests and she had her first sweat test and cystic fibrosis diagnosis at 28 days of Life. After the whirlwind of emotions and doctors at the Children’s Hospital of Denver, Logan's family learned how to take care of their little girl and then also made the decision to move back to Nikki’s home state of Minnesota to be closer to family and the University of Minnesota!
Molly
By Pamela Thompson 09 Jul, 2020
Molly is our only child and with in days of her birth she was having eye surgery in both eyes to correct congenital cataracts. She had both lenses removed and had to wear contacts as a tiny baby. She had glasses as well that did the same thing as her contacts but only would wear them at home due to the large thick lenses. We called them her "big eyes" as they magnified her eyes so much. Kids can be so unkind to anyone who is different so we made sure that Molly was comfortable and happy with her contacts and glasses. She didn't go to daycare, so my husband would take her with him to work and she was always pleasant and happy.
Family
By Pamela Thompson 30 Jun, 2020
The tenth (and final) Walk/Run in Memory of Sonia Balliet-Heidenreich is scheduled for Saturday, September 5 at Oak Grove Park in Fargo. The walk/run will kick off at 10 am and will be followed by a lunch (details on lunch to be determined pending current COVID status.)
Girl wearing tiara making heart shape with hands
By Pamela Thompson 30 Jun, 2020
Hand washing, disinfecting, sanitizing, staying home, avoiding crowds, staying six feet apart from others—all of this is just another Thursday for someone living with cystic fibrosis. And, like COVID-19, cystic fibrosis has no cure or vaccine.
More Posts
Share by: